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Senior Director, Global Patient Advocacy Boston United States,  

Alexionpharma (company)

Posted on : 09 October 2019

Project Description



Position Summary

The Sr. Director, Global Patient Advocacy will be responsible leading a global vision for the patient advocacy organization by driving, building and enhancing strategic alliances with key national and international stakeholders, including patient advocacy groups, physician advocacy groups, academic organizations, rare/ultra-rare disease-oriented organizations and other relevant stakeholders in response to patient needs and in support of Alexion’s global patient advocacy objectives and related strategic goals. In this role, the Sr. Director GPA manages country level patient advocacy direct reports in different markets and will be responsible building a high performing team. He/she will lead the effort to develop, implement, coordinate and communicate critical partnerships and programs related to Alexion’s commitment to patients with rare and ultra-rare diseases.  He/she will be responsible for managing the patient advocacy grants and sponsorship budget and aligning resources across the regions. The Sr. Director, Global Patient Advocacy will drive strategy across markets, proactively solve emerging issues, and define Alexion’s global position on relevant public health, economic, clinical, and political issues to key non-government stakeholders He/she will help advance Alexion’s patient centric mission internally and externally while bringing critical patient insights into the organization to inform decision making. He/she will have responsibility for Alexion’s patient advocacy landscape assessement, engagement strategy and internal patient repreenation across prioritized pipeline programs. Successful candidates also will be responsible for regularly communicating alliance development activities to internal stakeholders, and for representing the company’s efforts externally.

Principal Responsibilities

  • Manager of US and Canada Patient Advocacy teams
  • In close interaction with the local and/or country specific business, medical and scientific leaders, identify and cultivate alliances and partnership opportunities with a focus on improving patients’ access to potentially life transforming therapies, and advancing national/local patient advocacy organizations’ awareness and education to finally lead to patient access to such therapies.
  • Represent Patient Advoacy on prioritized pipline R&D programs
  • Drive successful stakeholder working teams, proactively identify emerging issues, and effectively communicate Alexion’s positions on relevant public health, economic, clinical, and political issues to key non-government stakeholders
  • Work cross functionally with close coordination with Medical, Commercial, and other groups in developing and implementing strategies to achieve Alexion’s patient advocacy organizations (PAO), in line with medical, policy and business objectives worldwide
  • By interacting closely with key non-government stakeholders Actively help position Alexion as a leading biotechnology company and progressive thought leader that can be a valuable resource for patient advocacy organizations and other major influencers of health care policy
  • Work closely with Therapeutic Area leaders of Alexion’s Medical Affairs, Development and Commercial organization, as well as Country and Regional Managers, in support of local strategies and objectives, and will coordinate with critical internal partners, including Global Corporate Communications, Commercial, Regulatory and Legal
  • Be responsible for regularly communicating alliance development activities to internal stakeholders, and for representing the company’s efforts externally.
  • Manage global patient Advocacy grants and sponsorship budget
  • Plan and lead patient advisory boards in close collaboration with cross functional business partners
  • As a key member of the Global Patient Advocacy team  the Sr. Director GPA will
  • Be responsible for driving Alexion’s efforts to establish strong relationships with Patient Advocacy stakeholders as well as advancing our patient advocacy organization efforts relating to Alexion’s medical/ scientific, regulatory and policy objectives with these stakeholders
  • Identify and develop strong relationships with critical patient advocacy organization stakeholders to advance common interests relating to rare/ultra-rare disease research and access; and collaborate on development of joint activities and events
  • Build a high performing team, inspire and motivate team members
  • Maintain and enhance relationships with existing partners, such as NORD, and other  patient advocacy and relevant allied stakeholder organizations
  • Lead and coordinate a global vision for patient advocacy organization partnership development, including efforts in support of local strategies and objectives in context of global priorities;
  • Prioritize tasks, and organize and manage multiple projects while maintaining an understanding of national and global perspectives
  • Communicate effectively and partner directly with internal customers and cross-functional teams
  • Coordinate projects with external consultants as needed or appropriate
  • Demonstrate ability to take initiative and consistently deliver high-quality, patient centric solutions


  • Minimum of 10 years' of related experience in industry positions or in patient advocacy organizations
  • Proven track record of successful interactions with national, regional and local patients advocacy organizations around health-related issues especially in the US
  • Knowledge of the legal and regulatory compliance environment impacting the pharma/bio industry
  • Passion for patients and research
  • Domestic and international travel required.
  • Strong leadership skills and sense of teamwork
  • Ability to work effectively in and across the management structure, and to collaborate and contribute to highly functioning and geographically diffuse team.
  • Strong planning and organization skills with the ability to set priorities effectively and efficiently, and the ability to manage multiple priorities and stakeholders simultaneously
  • Excellent analytical and strategic planning abilities; strong negotiation skills.
  • Excellent communications and presentation skills; and ability to write well and to present information to internal and external audiences in a clear and concise manner


  • A University degree is required; a graduate degree is strongly preferred



Boston, MA, United States


Some opportunities happen only once in a lifetime – like a job where you have the extraordinary opportunity to change lives. At Alexion, such opportunities arise through our unwavering mission to serve patients and families affected by rare diseases. These patients are our guiding star, and we act with integrity, urgency, and discipline because we know their lives are at stake.


Alexion is a global biopharmaceutical company focused on serving patients and families affected by rare diseases through the discovery, development and commercialization of life-changing therapies. As the global leader in complement biology and inhibition for more than 20 years, Alexion has developed and commercializes the first and only approved complement inhibitor to treat patients with paroxysmal nocturnal hemoglobinuria (PNH), atypical hemolytic uremic syndrome (aHUS), and anti-acetylcholine receptor (AchR) antibody-positive generalized myasthenia gravis (gMG). Alexion also has two highly innovative enzyme replacement therapies for patients with life-threatening and ultra-rare metabolic disorders, hypophosphatasia (HPP) and lysosomal acid lipase deficiency (LAL-D). In addition, the company is developing two late-stage therapies, a second complement inhibitor and a copper-binding agent for Wilson disease. Alexion focuses its research efforts on novel molecules and targets in the complement cascade and its development efforts on the core therapeutic areas of hematology, nephrology, neurology, and metabolic disorders. Alexion has been named to the Forbes list of the World’s Most Innovative Companies seven years in a row and is headquartered in Boston, Massachusetts’ Innovation District. The company also has offices around the globe and serves patients in more than 50 countries.


Alexion’s aspiration is to be the most rewarding place to work, where people are empowered to make a difference and where diversity of backgrounds and ideas is encouraged. We are looking for talented individuals who share our passion and commitment to change the lives of patients with rare diseases. We hope you will consider joining our team. Further information about Alexion can be found at:


As a leading employer in our industry, Alexion is proud to offer a highly competitive package of base and incentive compensation as well as a comprehensive benefits program designed to support the health, wellness and financial security of our employees and their families. Benefits include group medical, vision and dental coverage, group and supplemental life insurance, 401(k) with company match, tuition reimbursement, relocation assistance and much more.



Boston, MA, US

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